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And we DAY! : D

Thanks to the initiative of DIME Etiel AC that passage Congratulations!, May 12 is the day World awareness of the Dysautonomia what you think? I hope you all receive many questions and so many others can know about this disease and why not? empathize a little more with us;)

These days have been very entertaining to me about the Dysautonomia, also not physically has been, if it has been occupying my time happily, as I told you on Facebook and here too, I have wanted muuuuuuuuuuuuuchas an article in a magazine, hopefully with good diffusion and female target audience (I know there are men dysautonomic, but are the least and finally as the Lord will bring the doc: P)

And this visit on Tuesday by Dr. Jaime Bravo for interviews, as well as thank him for his excellent disposition and time, I'll try to transcribe the responses of more interest to us, here it is:)

1 -. What are the causes of Dysautonomia?

Most problems are caused low pressure and this may be due to

-Falla collagen tissue of the veins of the legs, one stops and the blood is in the legs or if you eat too much left in the stomach, if you have sex is blood in the genitals and every time this happens, little oxygen reaches the brain (impaired venous return) producing poor concentration, dizziness, headaches, fainting or near fainting and falling blood pressure .

-Altered autonomic nervous system (Sympathetic-vagal imbalance), which is the system which automatically controls many important body functions like pulse, blood pressure, temperature and breathing.

2 -. One of the remedies prescribed for this disease is Fludrocortisone (Florinef), how this drug works in patients with dysautonomia?

Fludrocortisone Minerocorticoide is that through sodium retention raise blood pressure helps, ale v clarify that although it belongs to the family of steroids is not a glucocorticoids, which is what produces side effects, weight gain, infections or osteoporosis that most people fear. This remedy is intended only to raise the pressure.

2 -. Why misdiagnosed disease?

Because the medical community and people feel that low pressure is beneficial, it is more to the dr. going to congratulate, but have low BP produces but all the symptoms of dysautonomia, the majority.

3 -. What happens with dysautonomic pregnant?

When a woman becomes pregnant will lower the pressure, but the Florinef can be taken in this period, gynecologists are afraid, but I've tried many times to dysautonomic pregnant Florinef without problems, as a minerocorticoide.

4 -. What relationship has the natural abortions with dysautonomia?

I do not know if the Dysautonomia which produces the abortion or the problem of collagen and connective tissue disease that can cause infertility. Now this can be avoided by taking folic acid. It is very important that any woman who wants to take 3 months before pregnancy folic acid (1 mg)

5 -. One of its recommendations for dysautonomic is consuming 9 grams of salt a day ...¡¡¡¿ HOW?! : P

you take a teaspoon (the youngest) and rasa are 3 grams and take three times a day, you can also dissolve in water and take it in brine. It is important to know that these are independent of salt in foods. The other is to take tablets of sodium chloride by the 9 gr.

6 -. Does Dysautonomia is a chronic disease?

Yes, and if the person is not going to have chronic fatigue, low pressure, cold etc is. Over the years the pressure is increasing and may be decreasing severe disease symptoms (fainting, dizziness, cold)

7 -. The time that you . disease known how much do you. progress has been made in investigating it? Shortly

and ignorance is universal, I think this is because doctors generally believe that low pressure is normal, being that most people have low pressure and very tired when they think of vitamins or the pre-teen girl is weak and does not repair low pressure that should be addressed.

___:) ___

Dear, I came to literature that he gave me to give 5 post more! so we have info for a while:)

This Friday will visit the Dr. Eduardo Dumas cual me tiene muy contenta , aquí tendremos la información de un cardiólogo que será muy interesante también.

Espero que este post les haya gustado y haberlas representado con las preguntas lo mejor posible :)

¡UN ABRAZO CARIÑOSO A TODAS (OS)!

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Dysautonomia, talk to you!

yesterday I found this letter is dated June 23, 2008, had two sessions of acupuncture and only months with the disease ... this was my feeling .

I know why you came, but still do not know why you stay.

Sometimes I do feel guilty, because I feel that I give you instead.

Then I remember that I never invite you, you came alone and silent.

Sometimes these so quiet, I think that you're gone ... but come back.

Will it be easier to simply accept your existence?

But I can not ... do not find it!

always stranger than he was before you ... and I am outraged by the idea that you stay for long.

Want to walk hand in hand? You and I are not friends! Give me rage! You made me suspicious of! Make me prey of your visits!

Aaaaaaaaaaahhhhhhhhhhhhhhhhhhhhhhgggggggggggggggggggggrrrrrrrrrrrrrrrrrrrrrrrrrrr!

....¿ how? ... ?...¿ Say what you say I call you ?...¿ why you say that? What is it that I'm not taking ?.... Let's see if you're right ... you arrive when I'm stressed when I have pain, sometimes anger, when I want nothing, when I leave ...

I'm going to take more care.

I'm going to want more.

I'm going to hear more.

And you .... You take a vacation already? A well-laaaaaaaaaaaaaaaaaargas!

I'll be OK!

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WARNING! ¡¡¡¡¡¡¡¡¡


are hoping that all regions! I tell them we're already in Facebook as "SerDisautonoma, Dysautonomia "... they are super recommend, because there they can find the chat we ever had on the blog: P, can actually be a more direct communication with other dysautonomic.

Love to all!

Leopard Gecko Nightlight

BLOG HAPPY BIRTHDAY !!!!!!!!!! Lack

Dear! with a post a little late (birthday) and a tiny surprise that comes just in time:)

First of all I thank you from the heart, life , the good vibes and positive energy they give to Blog, IT IS VERY USEFUL FOR ME! and without exaggerating, I have done this blog is one of the things I pride: D

My idea as a birthday gift was to achieve the blessed story .... but I have not spent much with that ... but I stick it : DDDDDD

But on the other hand, if I did something that I hope will bring benefits loooooooong. Inform me by mail, with Dr. Eduardo Dumas, the Department of syncope and dysautonomia and one of the architects of the page www.sincope.cl (link this to one side of this blog) asking us to write a post, something simple DO UD.DEBE wave .... what ijijijijijijij and this was your kind reply:

Nice write in your blog. Our concern in the past 20 years have been dysautonomias starting with the implementation of tilt test in 1991 in the U Hosp Clinical Catholic. There has been a wide dissemination of the subject and have trained several colleagues throughout Chile. To be an absolutely unknown, many colleagues trained to recognize dysautonomia and referral for study and management.

I agree to read the blog and establish cooperative ties . (I really liked it: P)
Dr Dumas
Dysautonomia Cardiovascular Laboratory, PUC

¿¿yyyyyyyy ??????? ????? What do you think? I find TOTAL, WONDERFUL, SPLENDID, BKN, Cool, Hairy .... etc ... The urge to PC. follow: DDDDD

I send a warm hug to everyone and we move forward to achieve the unthinkable!

Fta Receiver With Upscaling

Little:)

So, in a week this blog turns one year of existence and because of this I share some interesting facts, which I never stop we surprised:)

The countries that visit the Blog:

1 -. Chile with visits 1,746

2 -. Spain with 708

3 -. Colombia with 664

4 -. Mexico with 575

5-.Argentina with 256

6 -. U.S. 186

7 -. Venezuela with 67

8 -. Latvia 25

9 -. Peru with 19

10 -. Netherlands with 18

What do you think? I happy to communicate with people while you may be so far away, suffering, understands and lives the same as one.

The most read post:

1 -. Hey Doc: When you plan to upgrade their skills? with 287 visits

2 -. Dysautonomia, China medicine and other things) with 230 visits

3 -. Ni "Strong" Ni "Poor" with 173 views

And a PC.? faithful readers what has been your favorite post? personally tengo mi propio Ranking jajajajaja me gustó mucho escribir :

1-. En este Blog...¡NUNCA ESTAMOS SOLAS! Aún siento lo que escribí en este post, ya que la transformación del blog, leer más experiencias, que algunas probaran con la Acupuntura con buenos resultados, ser apoyo siempre! me encanta! y más de alguna vez me emociona :)

2-. Ni "Fuerte" Ni "Pobrecita" Levantarse y tener la actitud correcta con esta enfermedad es difícil, pero comprobadísimo que no imposible :D

3-. Frustration know it "right? Uuuuuuuuuuuufffffffffff Dona "frustration" that comes and goes ... and they all try to have as far as possible.

Traffic Sources

or rather, through to reach the blog page:

1 -. Mom Therapist This blog is written by another dysautonomic, and has a post dedicated to this subject, she generously put a link to my blog that makes many people come here. Sonia, my friend THANK YOU FOR YOUR SUPPORT!!

2 -. Being dysautonomic This was changing, for long the main source MT and I was just delighted that the second form is now search by name completito: D

3 -. Odyssey Chi This English-language blog China Medicine, completito copied the post about Dysautonomia and Chinese medicine, who wrote my therapist and make the link, became the third source of direction to this blog :)

Do not worry, I will not ask how they arrived what matters is that they came: D

So, why not for PC., through their comments, always full of good vibes, I doubt that would have continued writing.

I hope to give the gift next week: D

Love to all!

Rental Agreement Form Alberta

emotional guidance modest proposal: D

Thanks to a conversation with Agustina, our friend Argentina, reaches this post I hope you can help. When

us many disease diagnosis referred to a psychiatrist not that tell us that our problem lies in the STRESS and you think "stress?? but claaaaaaaaaro !!!!! who would not be stressed out with this? with all the consequences, "but (and perhaps many of us do) DO NOT WANT TO DOCTOR! with pills that we can dispose of even more. So how do we solve it?

worth mentioning (never hurts) that these recommendations are based on MY EXPERIENCE a. .. said, I continue: P

The Stress can have a myriad of sources that there is no post that supports it, but when the stress is emotional and this somatizing dysautonomic a body (which is already required) CAGAMOS!

According to Chinese medicine, if our energy channels are blocked by some unresolved emotion, the critical point is that, as we do not meet this signal or do not work that emotion, the body has no more than warn him loudly and as somatization. China Medicine has a map of this. Example: The therapist looks at you and realize your liver is functioning poorly, the emotion tied to this body is rage, then one must also clearing the channel (that's what makes the needles) as homework, work on solving the rage. Letter reads as simple right?

So I do not think the answer to that is a psychiatrist, that at least here in Chile, psychiatrists are not therapists to help you in that, for that would be a psychologist ... and that's never an easy road to take, to many (you) there is a resistance to receive help from someone so alien to one. My opinion is that it can be very helpful, because it is very easy to confuse emotions and verbalize not correct, sometimes we confuse anger with pain, grief with guilt, sometimes to a situation are all previous uuuuuuuuuuuuffffffffffffffffffffff how to solve!!

look at, analyze, think, clean, construrir, reconstruct, what we often do by instinct or family support, friends, couple ... but we're not super woman and the other either.

I believe that we learn to handle this the best we can, learn our limitations and we care little, but unfortunately not always sufficient.

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Among keep quiet and take the flag: S

Another time reading one of my favorite magazine, had a story comprehensive with respect to a health problem, with testimonials, doctors talk about it and woke up again a bug that again got a bit of noise in me (and I called a couple of day) I want one just like that Dysautonomia talk!

My reasons:

1 -. Whenever I read how long it takes to know your diagnosis, how many people will think that's going wrong and not know you can fix it.

2 -. Always looking for new information that the disease does not find anything "and read all the Dr. Bravo no? :)

3 -. A little more understanding by the reporting would be nice ... a bit tired of explaining the disease and that they find a good excuse for all disease ....¡ there!

But on the other hand, it happens that I'm certain (please tell me if I'm wrong) that in a job interview, none of us speak of the disease until we have a crisis ... and it is quite obvious who hire us if we include in the curriculum? Then try to raise awareness of the disease I think it has its pros and cons ... I'm dysautonomic and there are jobs that I can do, I like it or not, but I know it ... Is it enough? or do you also need to know in advance what my employer? ... mmmmm nu know, I get confused a bit, sometimes I think one thing has nothing to do with the other (to make more public the disease or suffer quietly), but also I think that if a former employer of mine, receives another person and this tells you is dysautonomic, if not (o) dismisses out of hand, it is sick to think ..

How can they take the first step to educate without suffering the cosecuencias? ... I guess everything has its costs.

MUUUUUUCHAS WANT FEEDBACK! OK? : D! That
hairs are !

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"Philosophy is my passion, is of my biggest dream, a goal and in turn a starting point to build upon ... Philosophy has given me what is so difficult to find, is to believe that I can understand everything, ask around and then feel frustrated but also happy about not being able to achieve ... Philosophy has made my days more interesting, I was filled with uncertain paths to which I would certainly travel, philosophy is life, is itself, its past, present and future, which is beyond and more here ... "

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I have 2 smile ... Chat

Una en mi cara y otra en mi cuello.

Hoy voy a escribir sobre las malas decisiones que uno toma, olvidando que es Disautónoma. Lo escribiré tranquila por que sé que mi mamá no lee mi blog, lo que podría ser triste, pero hoy es muy util jijijijijijij :P

¿Les conté que me cambie de pega?...ya que nos estamos conociendo mejor ( vamos a cumplir un año de relación :D) es importante que sepan algo de mí...¡Busco la pega ideal!

He tenido 2 que I loved a lot, and who for various reasons I had to leave.

The first was due to dysautonomia, when it appeared I had been promoted recently and scope to be 1 month and licensing tape ... when I returned after 4 months and the solution in my hands (acupuncture) threw me ... I cried like condemned, yet strange to some people I met there.

The second was recently ... when I returned from the license of cancer, and they handed my sticks (had little to do) I lowered the salary ... so I just found another stick left.

And now I work at a Pharmacy This if not the thought! What makes a stop dysautonomic 7 hrs. ? Sufroooooooooooooo! At 5 hrs. I do not glue and more! uuuuuuuuuuuuuuuuuuuuuuuuuuuuuuy!

I will be 3 years with this and still forget I have it! ... At least the money will come not so bad what all my debts to pay first? (

So we're looking again, one that:

1 -. Be compatible with my condition.

2-.Que I can afford.

3 - . That hope I can save (is it too much to ask ?????: D)

All this worries me ... but I look in the mirror in the morning and out of my will and my desire, I see a smile on my neck, like someone told me about, and as I remember that someone above you draw a smile:).

Then:

I HAVE 2 SMILE!

And from there I build my day.

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Failing ... : D

Hello beautiful! How are you? I hope that super !!!!! here we are with dysautonomia the edge, but ... and is controlled with the heat you're doing, does not help much, but so good:) tired magnets, needles and liiiiiiiiiiiiiiiiiiiiiiiiiitros Chinese water ah: P!

In recent weeks the idea that this blog will create a chat; Paloma kindly offered to do, which I appreciate greatly, because right now I am little bit full of paste (me change last week to cover shifts and get other people's rental, plus my hours of work: S)

For while this is happening, I propose the following: send me your internal mail testimony, questions, reliefs, etc. and I will publish as input, so all can review, comment, give words of encouragement ... in order that they happen!

I am committed to seeing every day the mail (albeit late) and publish their words.

The mail is: serdisautonoma@gmail.com

muuuuuuuuuuuuuuuuchos I look forward mails!

A big hug to all!

La Sportiva Nuptse 2010

LEAVE MY SOUL TALK ...

comes a point in life you do not know what to do,

you feel alone, lost and tiny among the people,

and having to choose as many times as saturated.

Sometimes I think why humans are not simple,

q why God or whether we wanted that we were created to understand such complex ...

And do not tell other people which I have come to understand its essence,

but by my own spirit, my own skin.

Such are the times that hard to understand ...

understand the ways of life, signs that she can give, the difficulties ...

And I look in the mirror and ask me so many things ...

how I got here, how to be who I want to be,

how to deal with those who want to be ...

Yet I wonder ...

and I'm content with silly answers ... irremediable

and continue to live, walk for life thorny mountain and darkness,

trying to get ahead, trying not to look back.

just in these letters is what I try to let my soul speak ...

to see my soul as I look at my face in the mirror ...

and let my dreams fly, look my fears, anxieties, but my strength ...

just trying to understand or figure out who I am, who I be ...

trying to see that it is necessary to look back to move forward.

STEFANIE Riani

How Doctors Check For Ear Infections

The use of computers in education ... Silences

When we speak of acts ity and the progress that it implies is inevitable aside the many innovations in technology, specifically computer. The computer, which has developed greatly over recent years, has imposed a way into our lives that has produced new ways of working and therefore also new possibilities for development of knowledge and personality, we speak here of education itself.

computing has given us, and surely I will continue doing, "a multitude of benefits and resources not only useful but necessary to install our students used to this world" computerized "in an education that is very traditional but meets their youth and the society of his time. In this way information technology is integrated educational level, and is no longer seen as external, using it merely as objects of study but as a mere instrument or teaching resource. We speak here of those computer programs that have features and functions that support the teaching-learning process and in fact are necessary in the training of individuals responsible for the XXI Century, we call these programs: Educational Software.

We know clearly in its many forms that travel throughout the curricula and high school students ranging from libraries, typewriters, calculators, books, and even others who require more complex processes such as experiments, laboratories, warehouses, simulation of natural phenomena, etc., contain pictures, videos, music, numbers, letters.

Essential Educational Software Features *

"They intended to facilitate the educational process.

-orient the teaching-learning process, are interactive and their use not only involves the collective support among students, but a computer-pupil relationship important.

"They're easy for both teachers and students.

"They have specific learning objectives and information by topic to work.

"It's a motivational tool since its implementation in education is to motivate students not only on new topics to work in class, but also to learn more about computer science.

possess -assessment systems where students can learn to self-assessment (metacognition) to think about their mistakes and not to commit.

- these programs are adapted to the individuality of learners and different contexts in which they were implemented.

Features that meet the educational software in the teaching-learning process *

Among all the functions you use educational software on the one hand are complying with an innovative feature as the use of technology can be considered as an important update of education also serves as an evaluation function since it tracks the learning processes that are taking in students, as well speak of a function instructive and informative as the knowledge that circulates in the programs promote certain attitudes in students and targets, and motivating role implies that students are attracted to the themes given to the implementation of computers.

Critical view

The use of educational software in secondary school is very successful because it is an educational resource more motivating than a teacher can use. This motivation can occur in several ways, not only as an interactive resource, fun and "different" from what we are accustomed to see in the classroom, but mainly because it is computer science, computing and technology world in which found students. The use of these resources is thus not only a method of carrying out a topic high school students, but is an update of the educational act that many times young people are distant from them. A class that is based not only dictates, diagrams on the blackboard, traditional assessments, books, etc., but in addition to their daily work technology, specifically the educational software, the student is something closer to their lives outside the scope school, their interests. Something that is also very important is that with the use of software and computers in education is also taught, in addition to the particular subject that touches every teacher- to see computers in a different way that the students know today, the computer programs and applications are not just for play, chat or communicate, but they are also very useful to find information, learn, interact with them ... well, education.

This is very important to put the school in keeping with the society of knowledge ... but still must consider the importance of books and teacher's presence can never be replaced, as the warmth of the human encounter is unchangeable even by the most advanced computer of all time, and we must not forget that the brain is the best and only tool, to put it in a way, which is able to create a myriad of thoughts and equations without even the slightest need for the use of technology .

Let's be careful, do not young people of our time to leave their brains in their nightstands calm and confident to take a computer ... and we have given enough calculators to think for themselves or with the much used Google, that sort of "God" which is so easy going and just press a button to get their hands on all the knowledge of world without further investigation.

We must never forget the traditional teaching, the most sacred books, blackboards and even the hours of tired of complaining students to listen to the teachers make their classes .

Even so , must be aware of this world we live in world that can cost some people understand and may never finish to learn, but that after all this world is the reality that shapes and determined young people who are in our classrooms. In this way we carry in our purse or wallet teacher, chalk and eraser as has been done forever, but also keep in mind these new tools to address the classes such as computers, technology in general ... always use them carefully and cautiously, without undue or excessive use of them.

Stefanie Riani

* Data from Pere Marqués "Educational Software"

Little Blisters On The Gums

dysautonomia could not be less this year ...

And just like that was. Tuesday January 4 in the afternoon began the first crisis of the year and went with Tutti, good average of fainting, dizziness hartooooooooooo (even if still in bed) and by a faint flower Cototo in the front!
I had to count on the new sticks (I month and a half) and of course, tired but understanding and concern ... It will be sustainable over time? I guess it is related to the amount of suffering crisis ... if I keep watching as he had done there should be no problems, as it has in these 2 years (yes, the fault was mine alone make me not time to go to my therapist.)
This time I lost an important chance to hit and it hurt enough. Saturday would have been the first of many Saturdays in a very good job opportunities in the near future and as it should enable me to it this week and could not go, I had to leave ... and I say leave (not that I left) that came a moment when, after trying to give possible solutions, I had to say: You know what? descartame am dysautonomic and truth I can not say with certainty that the more I watch that for more than 2 ½ years ago I find this muuuuuuuuy well, I'm not going to happen at any time.
This was actually said on a Wednesday and Saturday for I'm all right, but far from what most surprised me were the words out of my mouth: I AM dysautonomic ... and if all we know, did a blog about it, which in its presentation starts saying it, but I've never expressed that way.
all It seems so unfair sometimes, but I can not deny who I am and find the nicest way of presenting the world with this, is what, at least to me, it's hard ... but I seem to cost less as before: P I
Paulina, I have 27 years, I can be governed person, super efficient in my paste, friendly, have more defects, blemishes, and I'm dysautonomic ... how important is it for the rest?
Although the disease does not define me all the time, when a burst leaves havoc and must overcome them the best we can and continue ... to be only Paulina.

PS: I was forgetting something important muuuuuuuuuuuuuuuuuuuuuy! Publicly thank my cousin took me Soledad lunch on Friday), the Danny that I went to see friends I love you! and especially to you, beautiful child, I took care with love, you made me laugh (when I just wanted to mourn) and approved with 10 in support of your first crisis of this disease so rare right? : D to all of you. Muuuuuuuuuuuuuuchas thanks!